The third ESE Hypoparathyroidism Patient Forum was held on 28 September 2024.
The European hypopara community gathered again to discuss various aspects of managing the disease. This edition of the webinar focused on such key topics as long-term issues with hypoparathyroidism, both from the clinical perspective and the impact on social and family life, the role of nutrition in managing hypoparathyroidism, and the new treatments landscape. ESE thanks all clinicians, patients and their family members involved in this event, for sharing expertise and personal experiences, and creating an engaging webinar for an international audience of almost 200 participants. We also thank all patient organisations who helped us in organisation and promotion of this event.
The programme, recordings of the sessions, and additional resources are available below.
This event was sponsored by Ascendis Pharma, Amolyt Pharma and BridgeBio.
Welcome and introduction
Prof. Andrea Giustina (Italy)
Natalie Grosset (France)
Session 1
Hypoparathyroidism: Long-term issues
Chairs: Assoc. Prof. Karin Amrein (Austria) and Tanja Richter (Germany)
Long-term issues with treatment and disease and how to prevent and manage them
Dr. Tanja Sikjaer (Denmark)
Long-term impact on social and family life:
Parent perspective - Stela Pirvu (UK)
Couple perspective - Jane & Steve Compton (UK)/ Natalie Grosset & Christophe Hagenmuller (France)
Child perspective - Dr. Danaë Holenka (Canada)
Q&A
Session 2
Chairs: Prof. Heide Siggelkow (Germany) and Helen Hopkins (UK)
Hypoparathyroidism: Calcium in nutrition
Tania Gelmetti (UK)
Q&A
New treatments in hypoparathyroidism
Dr. Andrea Palermo (Italy)
Q&A
Open Q&A with all speakers and chairs
Chairs: Prof. Heide Siggelkow (Germany) and Helen Hopkins (UK)
Session close
Natalie Grosset, France
Prof. Andrea Giustina, Italy
Watch the webinar recording
Watch the original English recording of each session by clicking through the videos on the right.
Watch the webinar recording (French)
Watch the recordings of each session with a French translation by clicking through the videos on the right.
This is a recording of a live simultaneous translation performed by a third party during the live virtual event. The European Society for Endocrinology does not accept responsibility for its accuracy. The remote delivery carries a risk of disruptions to the audio-visual feed, which may lead to interruptions of interpretation. In case of any inconsistency between the interpretation and the original language of the webinar, please refer to the original English language recording.
Watch the webinar recording (German)
Watch the recordings of each session with a German translation by clicking through the videos on the right.
This is a recording of a live simultaneous translation performed by a third party during the live virtual event. The European Society for Endocrinology does not accept responsibility for its accuracy. The remote delivery carries a risk of disruptions to the audio-visual feed, which may lead to interruptions of interpretation. In case of any inconsistency between the interpretation and the original language of the webinar, please refer to the original English language recording.
Watch the webinar recording (Romanian)
Watch the recordings of each session with a Romanian translation by clicking through the videos on the right.
This is a recording of a live simultaneous translation performed by a third party during the live virtual event. The European Society for Endocrinology does not accept responsibility for its accuracy. The remote delivery carries a risk of disruptions to the audio-visual feed, which may lead to interruptions of interpretation. In case of any inconsistency between the interpretation and the original language of the webinar, please refer to the original English language recording.
Additional resources
See additional materials provided by the speakers of the webinar.
