The second ESE Hypoparathyroidism Patient Forum was held on 28 October 2023.
Following on from the first webinar, which provided comprehensive information about the symptoms and treatment, this event focused on specific aspects of everyday life: adaptation of treatment and communication between the patient and the doctor. Each of the topics was presented by both clinical and patient experts, providing a wide perspective and a discussion platform for the two communities.
During the webinar, it was discussed how the everyday management of the condition is affected depending on the different activities undertaken by patients. It was also identified that challenges often arise for patients with hypopara in accessing a specialist who understands their condition, and therefore subsequently accessing the appropriate treatment. The key elements of good communication, as well as education for both doctors and patients were also discussed.
The recordings of the sessions are below.
This event was sponsored by Ascendis Pharma and Amolyt Pharma.
Sessions and recordings
Welcome and introduction
Prof. Andrea Giustina, Italy
Natalie Grosset, France
Session 1: Adaptation of hypopara treatment in everyday life
Speakers:
Prof. Heide Siggelkow, Germany
Simone Jentsch, Germany
Chairs:
Prof. Jens Bollerslev, Norway
Perny-Ann Nilsen, Norway
Session 2: Talking to your doctor
Speakers:
Liz Glenister, United Kingdom
Prof. Bill Fraser, United Kingdom
Chairs:
Prof. Maria Luisa Brandi, Italy
Tanja Richter, Germany
Session close
Natalie Grosset, France
Prof. Andrea Giustina, Italy
Watch The Webinars
Watch the recordings of each session in English by clicking through the videos on the right.
