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ESE Hypoparathyroidism Patient Forum 2024

This event has now taken place.

Saturday 28 September 2024, 10:00 - 13:00 CEST

Online

 

Programme*

10:00 - 10:15
Welcome and introduction

Prof. Andrea Giustina (Italy)
Natalie Grosset (France)

10:15 - 11:15
Session 1
Hypoparathyroidism: Long-term issues

Chairs: Assoc. Prof. Karin Amrein (Austria) and Tanja Richter (Germany)

Long-term issues with treatment and disease and how to prevent and manage them
Dr. Tanja Sikjaer (Denmark)

Long-term impact on social and family life:
Parent perspective - Stela Pirvu (UK)
Couple perspective - Jane & Steve Compton (UK)/ Natalie Grosset & Christophe Hagenmuller (France)
Child perspective - Dr. Danaë Holenka (Canada)

Q&A

11:15 - 11:30 Break

11:30 - 12:30 
Session 2

Chairs: Prof. Heide Siggelkow (Germany) and Helen Hopkins (UK)

Hypoparathyroidism: Calcium in nutrition
Tania Gelmetti (UK)

Q&A

New treatments in hypoparathyroidism
Dr. Andrea Palermo (Italy)

Q&A

12:30 - 13:00
Open Q&A and session close

 

*may be subject to change

This event will be held in English. Simultaneous translations into French, German and Romanian will be available.

This event is kindly supported by Ascendis Pharma, Amolyt Pharma and BridgeBio.

We encourage you to watch recordings from the past webinars in 2022 and 2023, which covered such topics as hypoparathyroidism symptoms, management, adaptation of treatment, communication with your doctor, and other.