Saturday 28 September 2024, 10:00 - 13:00 CEST
Online
Are you a patient with hypoparathyroidism? Join us for the Hypoparathyroidism Patient Forum webinar hosted by ESE, to attend talks by clinical experts and hypopara patients.
This webinar will be held in English. Simultaneous translations into French, German and Romanian will be available.
Registration is free for this event.
This event is free to attend. Registration is now open.
Once you have registered, you will be sent a confirmation email from Zoom, and access information approximately 1 week before.
Sessions will be carried out of Zoom, so please ensure that you are able to access Zoom on your device.
The recording of the webinars will be available on the ESE website approximately 4 weeks after the webinar has taken place.
We invite you to submit your questions to the panel before the event. You can do it via this form.
- Questions related to the topics of the webinar will be prioritised.
- We are not able to give medical advice or answer questions related to particular circumstances of a patient. Please contact your doctor if you require medical advice.
- You will also be able to ask questions live during the webinar.
- We encourage you to watch recordings from the past webinars in 2022 and 2023, which covered such topics as hypoparathyroidism symptoms, management, adaptation of treatment, communication with your doctor, and other.
Programme*
10:00 - 10:15
Welcome and introduction
Prof. Andrea Giustina (Italy)
Natalie Grosset (France)
10:15 - 11:15
Session 1
Hypoparathyroidism: Long-term issues
Chairs: Assoc. Prof. Karin Amrein (Austria) and Tanja Richter (Germany)
Long-term issues with treatment and disease and how to prevent and manage them
Dr. Tanja Sikjaer (Denmark)
Long-term impact on social and family life
Stela Pirvu (UK) - Parent perspective
Natalie Grosset and Christophe Hagenmuller (France) - Couple perspective
Q&A
11:15 - 11:30 Break
11:30 - 12:30
Session 2
Chairs: Prof. Heide Siggelkow (Germany) and Helen Hopkins (UK)
Hypoparathyroidism: Calcium in nutrition
Tania Gelmetti (UK)
Q&A
New treatments in hypoparathyroidism
Dr. Andrea Palermo (Italy)
Q&A
12:30 - 13:00
Open Q&A and session close
*may be subject to change
This event will be held in English. Simultaneous translations into French, German and Romanian will be available.
This event is kindly supported by Ascendis Pharma and Amolyt Pharma.
11/07/2024
Patients , Clinicians , Nurses , Researchers , Public , ESE Events , Patient Forums , Calcium and Bone , Patients , Clinicians ,