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ESE Rare-CaPaB: ESE Educational programme on Rare Calcium, Phosphate and Bone disorders

ESE Rare-CaPaB: ESE Rare Calcium, Phosphate and Bone disorders

The ESE Rare Calcium, Phosphate and Bone disorders (ESE Rare-CaPaB) programme is a new expert led initiative of the European Society of Endocrinology (ESE) aimed to address the unmet needs of the calcium, phosphate and bone community. This educational programme will explore a range of calcium, phosphate and bone disorders with the following objectives:

  • Identify the priorities to address concerning calcium, phosphate and bone disorders, and how to action these
  • Understand and support the journey and management of patients, including in the transition from paediatric to adult care, as well as the ongoing needs of such patients throughout adulthood
  • Establish ways to increase clinical awareness and diagnosis, including for the late onset forms
  • Increase support and education of expert and non-expert healthcare audiences who regularly manage such patients

The ESE Rare-CaPaB programme will be developed within the period of 2 years, and encompass four stages (more information about the stages in the About ESE Rare-CaPaB section).

The first priority is to define a set of unmet needs concerning patients with the calcium, phosphate and bone disorders covered in the programme. In order to gain wider feedback from clinicians and other healthcare professionals, as well as from European stakeholders regarding the key areas of the ESE Rare-CaPaB programme to explore, the expert panel created a survey with five questions (one per condition) with a proposed set of clinical, diagnostic and therapeutical unmet needs. This survey will help us prioritize the key educational areas to be covered during the ESE Rare-CaPaB programme.

This survey will be launched soon! Stay tuned!